Additional Research Support
PaCER has also been involved in external research support projects since 2014. View some of the projects below:
2020
Patient Experience of the New Community Rehabilitation Model of Care
Lead Researchers: Jean Miller, Sylvia Teare;
Principal Investigator: Tracy Wasylak,
Chief Program Officer, Strategic Clinical Networks, Alberta Health Services and Co-investigators: Kiran Pohar Manhas, CIHR-AHS Health System Impact Fellow at Alberta Health Services and Katie Churchill Senior Practice Lead, Allied Health Professional Practice & Education, Alberta Health Services
Partners: Community Rehabilitation Teams, Alberta Health Services; Health Professions and Profession Practice; Allied Health Provincial Team, Alberta Health Services
Objective: To understand patient experience of the novel Alberta Model of Care in Community Rehabilitation with emphasis on patient experience and perspective on policy and practice tactics aimed to promote patient-centred care.
2018
“I Promised We’d Get Help”: The Parents’ Journey. Experiences of Parents and Family of Youth Visiting the Emergency Department with Mental Health Concerns
Lead Researchers: Susanna Kockzur, Esther J. Halton, Karina Pintson;
Principal Investigator: Svetlana Shklarov
Partners: Alberta Health Services Calgary and Edmonton Zones; Addictions and Mental Health Strategic Clinical Network; Emergency Strategic Clinical Network; Mapping and Planning Support Alberta Capital Region
Objective: To explore the experiences of parents, family and/or significant adult of a youth visiting the emergency department with mental health or substance use concerns.
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Understanding Patient Experience With Bladder Cancer in Alberta: "You Have to Beg, Borrow and Steal to Get Information"
Lead Researchers: Susan Nguyen, Marlyn Gill;
Principal Investigator: Dr. Nimira Alimohamed
Partner: Alberta Health Services Cancer Strategic Clinical Network
Objective: To explore the treatment journey experience of bladder cancer patients in Alberta.
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Building Partnerships to Improve Care of Early Knee Osteoarthritis Patients
Lead Researchers: Jean Miller, Sylvia Teare
Partner: CIHR grant
Objective: Develop a risk management tool to assist early Knee OA patients manage their disease by increasing their engagement in the care process with their family doctors.
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Impact of the Making it Work Program on People with Inflammatory Arthritis
Lead Researchers: Jean Miller, Sylvia Teare, Romita Choudhury;
Principal Investigator: Dr. Dianne Mosher, Division of Rheumatology, Department of Medicine, Faculty of Medicine, University of Calgary and
Co-investigators: Dr. Deborah Marshall, Faculty of Medicine, Department of Community Health Studies, University of Calgary
Partners: Arthritis Research Canada, Alberta Economic Development and Trade, Alberta Schools Employee Benefit Plan
Objective: To understand the longer term impact of the MiW program on the work and home lives of people with inflammatory arthritis.
2017
Your Experience with the Making it Work Program – The Voice of Program Participants
Lead Researchers: Jean Miller, Sylvia Teare
Partner: Dr. Diane Moser
Objective: The evaluation of participant experience with the program online modules, group meetings, technology, individual sessions and rehabilitation professionals.
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The Patient Experience of Waiting for Elective Surgery
Lead Researcher: Marlyn Gill
Partner: Alberta Health Services Surgical Strategic Clinical Network
Objective: To add the Patient Perspective of Waiting for Elective Surgery in Alberta to the large Adult Coding Access Targets for Surgery (aCATS).
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Patient Perspectives and Expectations about Primary Care: occasional users, seniors and those with complex and chronic care needs
Lead Researchers: Susanna Kockzur, Marlyn Gill, Romita Choudhury
Partner: Health Quality Council
Objective: To provide an independent snapshot of how patients see primary health care as a system and to hear their outcomes and expectations for primary care.
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Breast Cancer Patients’ review of Educational Materials Provided at Diagnosis and Before Surgery
Lead Researchers: Romita Choudhury, Laura Wheeler
Partner: Alberta Health Services Cancer Strategic Clinical Network
Objective: To identify current breast health education supports that are available to breast cancer patients and understand where and how these resources can be improved.
2016
Patient Engagement to Identify Priorities for Shared Decision-making Tools in Cardiac Care: A PaCER Study
Lead Researchers: Jean Miller, Sylvia Teare
Partners: Alberta Health Services Cardiovascular and Stroke Strategic Clinical Network
Objective: To describe patient experiences with acute coronary syndrome (ACS) care and decision-making when admitted to acute care with an ACS event.
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Understanding Low Back Pain Patients’ Experience with Family Physicians and Diagnostic Imaging
Lead Researcher: Marlyn Gill
Partners: Choosing Wisely Canada (Alberta), Alberta Medical Association, and Alberta Health Services Bone and Joint Health Strategic Clinical Network
Objective: To understand non-red flag low back pain patients’ experience with their family physicians. This was part of a concurrent provider-patient study aimed at reducing low return expensive diagnostic imaging and improving the care of non red-flag low back pain patients who would not benefit from surgery.
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Understanding Patient Perspectives on Stroke Prevention Therapy Decisions in Atrial Fibrillation
Lead Researcher: Marlyn Gill
Partners: Libin Institute, The Heart and Stroke Foundation, and the Alberta Health Services Heart and Stroke Strategic Clinical Network
Objective: To obtain information from atrial fibrillation patients to understand how they made their choices with respect to deciding which, if any, stroke preventing medication they would take. The information is being used to develop an interactive computer program with respect to helping physicians and providers decide on a drug.
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Enhanced Recovery after Surgery from the Patient Perspective
Lead Researchers: Marlyn Gill, Sandra Zelinsky
Partner: Alberta Health Services Surgical Strategic Clinical Network
Objective: A study as part of the patient experience component of Enhancing Patient’s Recovery After Surgery (ERAS): Strategy to Transform Patient Care and Maximize Expected Value project.
2015
Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Optimizing Centralized Intake for Rheumatoid Arthritis: Stage 2 Patient Engagement Research
Lead Researchers: Jean Miller, Sylvia Teare
Partners: The Arthritis Society Models of Care Catalyst Grant; Alberta Innovates Partnership for Innovation in the Health System (PRIHS)
Objective: To discover the issues RA patients face in accessing and navigating the health care system and what they think is key to a system that is responsive to their RA management needs.
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Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Issues Faced by First Nations, Métis, and Inuit RA Patients in Accessing and Navigating the Health Care System: Stage 2 Patient Engagement Research
Lead Researchers: Jean Miller, Sylvia Teare
Partners: The Arthritis Society Models of Care Catalyst Grant; Alberta Innovates Partnership for Innovation in the Health System (PRIHS)
Objective: To gather the perspectives of FNMI people with RA on the issues they face in accessing and navigating the health care system and what they think is key to a system that is responsive to their RA management needs.
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Meaningful Results for Meaningful Engagement: Enabling Patient and Family Participation in the AHS Seniors Health Strategic Clinical Network: A PaCER Study
Lead Researchers: Sylvia Teare, Jean Miller
Partners: Alberta Health Services Seniors Health Strategic Clinical Network
Objective: To proactively work with seniors to ensure the priorities and directions of the Seniors Health SCN are informed by their perspectives.
2014
Understanding Safe Surgery Checklist Experiences of Surgical Patients in Alberta
Lead Researchers: Mary Sheridan, Sandra Zelinsky
Partner: Alberta Health Services Surgical Strategic Clinical Network
Objective: To explore patient pre-surgical experience of being asked the questions in the safe surgery checklist all hospitals should do immediately before surgery.
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Palliative and End of Life Care (PEOLC) Provincial Framework: Patient Feedback and Response
Lead Researchers: Marlyn Gill, Nathan Owen
Partners: Alberta Health Services Palliative End of Life Pan Strategic Clinical Network
Objective: To obtain patient and family feedback on the existing provincial framework for improving palliative and end of life care across Alberta with a view to making it more patient and family centred.
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Understanding Patient and Family Experience in the Daily Care of Critically Ill Patients
Lead Researcher: Marlyn Gill
Partner: Alberta Health Services Critical Care Strategic Clinical Network
Objective: To gather patient and family perspectives of critical care in Alberta as the patient and family component of a larger Alberta Innovates Partnership for Innovation in the Health System (PRIHS) funded study Reassessing Practices in the Daily Care of Critically Ill.
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Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Stage 1 Patient Engagement Research
Lead Researchers: Jean Miller, Sylvia Teare
Partners: The Canadian Institutes for Health Research, The Arthritis Society and Alberta Innovates – Health Solutions
Objective: To discover what patients with osteoarthritis think makes for quality care and what services and support they find most helpful.
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Understanding How Patients Manage Their Chronic Illness: What Works and How
Lead Researcher: Marlyn Gill
Partner: WARD of the 21st Century, O'Brien Institute for Public Health
Objective: To understand the experience of complex, chronic patients as they manage their multiple illnesses to inform a larger project constructing a user-friendly interactive website to facilitate open communication and collaboration among providers and patients as they manage multiple complex, chronic illnesses.