PaCER Team Projects

PaCER has been involved in over 35 projects since its inception in 2012. 

Current Projects

Understanding parent perspectives about newborn screening for Cytomegalovirus (CMV)

Sponsored by: Dr. Eliana Castillo; funded by: Maternal Newborn Child & Youth Strategic Clinical Network (MNCY SCN) Alberta Health Services (AHS)


IBD and Mental Health

Sponsored by: Dr. Deborah Marshall; funded by: IMAGINE SPOR & Alberta Health Services (AHS)


Transitioning from Pediatric to Adult Care for Youth Living with Chronic Disease

Sponsored by: Dr. Deborah Marshall; funded by: Alberta Children's Hospital Foundation Chair in Child Health Research- Husky Energy Chair in Child and Maternal Health


Honouring Life 2.0

Sponsored by: Dr. Richard Oster; funded by: Alberta Health Services (AHS) Indigenous Wellness Core


Engaging with families to improve pregnancy outcomes, identify unmet needs, and prioritizing research initiatives

Sponsored by: Dr. Rohan D'Souza; funded by: Canadian Institutes of Health Research (CIHR) & McMaster University


Past Projects

2022

Experiences of Albertans from rural, remote, or isolated communities returning home after being hospitalized; sponsored by: Tracy Wasylak; funded by: Alberta Health Services (AHS) Strategic Clinical Network (SCN)  

Understanding the barriers and supports to a return to health from long COVID; sponsored by: Paul Wright; funded by: Alberta SPOR SUPPORT Unit (AbSPORU) & Alberta Health Services (AHS) Neuroscience, Rehabilitation & Vision (NRV) Strategic Clinical Network (SCN)  

Family Member and Caregiver Experiences: Waiting in Emergency Departments in Alberta Hospitals sponsored by: Tracy Wasylak; funded by: Alberta Health Services (AHS) Strategic Clinical Network (SCN)  

Understanding virtual healthcare experiences of adults living with diabetes and/or their caregivers in Alberta during the COVID-19 Pandemic; sponsored by: Dr. Maria Santana; funded by: Alberta SPOR SUPPORT Unit (AbSPORU)

What are the experiences of newcomers accessing COVID-19 vaccine information and COVID-19 vaccines in Alberta during the COVID-19 pandemic?; sponsored by: Dr. Gabriel Fabreau; funded by: Refugee Health YYC organization through CIHR & Alberta International Medical Graduate Association (AIMGA)

2021

Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient-led qualitative study; sponsored by: Dr. Deborah Marshall; funded by: Alberta Children’s Hospital Foundation (ACHF)

A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food; sponsored by: Dr. Deborah Marshall; funded by: IMAGINE Network through CIHR

2020

Accessing needed IBD (Inflammatory Bowel Disease) resources and information post diagnosis: A patient-led Alberta study; sponsored by: Dr. Deborah Marshall; funded by: IMAGINE Network through CIHR

Here to there: Exploring what resources Inflammatory Bowel Disease (IBD) patients need after diagnosis; sponsored by: Dr. Deborah Marshall; funded by: IMAGINE Inflammation, Microbiome, & Alimentation: Gastro-Intestinal & Neuropsychiatric Effects

Unplugging while plugged in: A peer-to-peer exploration of the impacts of dialysis on the mental wellness of patients with chronic kidney disease; sponsored by: Tracy Wasylak; funded by: Alberta Health Services (AHS) Kidney Health Strategic Clinical Network (SCN)

2018

The Search for Support: Young Adults and their Experiences finding their way with Inflammatory Bowel Disease (IBD); sponsored by: Dr. Deborah Marshall; funded by: IMAGINE Inflammation, Microbiome & Alimentation Gastro-Intestinal & Neuropsychiatric Effects

Storytelling in the health care System: Experiences of Indigenous patients, their family and friends looking for support when cancer is diagnosed; funded by: Alberta Health Services (AHS) Population, Public and Indigenous Health Strategic Clinical Network (SCN)

Your Body, Your Voice: Cancer Screening on the Piikani Reserve, What Works and What Doesn’t; funded by: Alberta Health Services (AHS) Population, Public and Indigenous Health Strategic Clinical Network (SCN)

Sharing Our Cancer Journey Right from the Start: The Experiences of Métis Settlement Families; funded by: Alberta Health Services (AHS) Population, Public and Indigenous Health Strategic Clinical Network (SCN)

When first finding out that a loved one has cancer: The Experiences of Indigenous families and friends; funded by: Alberta Health Services (AHS) Population, Public and Indigenous Health Strategic Clinical Network (SCN)

Understanding Seniors’ Experiences Living with Malnutrition; funded by: Alberta Health Services (AHS) Seniors Health Strategic Clinical Network (SCN)

Understanding the Experiences of Patients and their Companions with Managing a Cardiopulmonary Condition; funded by: Alberta Health Services (AHS) Cardiovascular Health and Stroke Strategic Clinical Network (SNC)

2016

Experiences of people finding their way to manage from crisis to recovery; funded by: Alberta Health Services (AHS) Addictions and Mental Health Strategic Clinical Network (SCN)

Experiences of teens after concussion; sponsored by: ????; funded by: Integrated Concussion Research Program

Understanding parents’ experiences with stillbirth; funded by: Alberta Health Services (AHS) Maternal, Newborn, Child, and Youth Strategic Clinical Network (SCN)

2015

What is it like for young women who go to Emergency Departments with Chest Pain - the different tracks they take; funded by: the Libin Institute

Patient Experience with IBD and clinic services; funded by: the Calgary Inflammatory Bowel Disease Clinic

Early stroke experience before the patient reaches the hospital door as part of project to reduce the time ‘from door to needle’; funded by: QuICR - an AIHS Collaborative Research & Innovations Opportunities (CRIO) Team grant

What is it like when you realize that you are just not thinking straight - the early experience with mental illness; funded by: Alberta Health Services (AHS) Addictions and Mental Health Strategic Clinical Network (SCN)

Why do patients decide to become engaged in Health Systems as advisers and researchers; funded by: Calgary South Health Campus

The rocky road and the gifts when couples manage chronic health concerns at home; funded by: St. Elizabeth Health Care, Toronto

2014

Transitioning from ICU - a patient and family perspective; funded by: Alberta Health Services (AHS) Strategic Clinical Network (SCN)

Experiences of Immigrant women (South American, Russian, and Middle Eastern) seeking diagnosis and support for cancer; funded by: Alberta Health Services (AHS) Strategic Clinical Network (SCN)

2013

The Hidden Pathways of Chronic Illness - the study of a cross section of chronic patients and their journey to wellness despite health concerns; funded by: the Canadian Foundation for Healthcare Improvement (CFHI)

Cancer survivors and their families at Wellspring - a Calgary-based community wellness community of self-help, programs, and services; funded by: the Canadian Foundation for Healthcare Improvement (CFHI)

2012

Hiding the pain - experiences of people with undiagnosed joint pain; funded by: the Canadian Foundation for Healthcare Improvement (CFHI)

Gates people face while waiting for Arthritis knee surgery; funded by: the Canadian Foundation for Healthcare Improvement (CFHI)

O Canada! Knee replacement - post-surgical experiences of older South Asian immigrants and their families; funded by: the Canadian Foundation for Healthcare Improvement (CFHI)