PaCER Publications

These citations are current as of 2024.

Publication about PaCER Projects

Beaulieu, L., Bruce, M., Tiedemann, B., Chishti, R., Iyiola, I., Penny, S., ... & Castillo, E. (2024). Perspectives of parents with lived experience of cytomegalovirus infection, on universal newborn screening for congenital cytomegalovirus (cCMV) in Canada: a patient-led qualitative study. BMJ Paediatrics Open, 8(1), e002851.

Sutherland, H., Sutherland, S., Rondeau, R., Minde, G., Nielssen, I., & Flemons, K. (2024). Supporting Indigenous youth to live with continued resilience, meaning and hope. Spectrum, (13).

Bruce, M., Lopatina, E., Hodge, J., Moffat, K., Khan, S., Pyle, P., ... & Santana, M. J. (2023). Understanding the chronic pain journey and coping strategies that patients use to manage their chronic pain: a qualitative, patient-led, Canadian study. BMJ open, 13(7), e072048. doi: 10.1136/bmjopen-2023-072048

Currie, G. R., Harris, M., McClinton, L., Trehan, N., Van Dusen, A., Shariff, M., ... & Marshall, D. A. (2022). Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study. BMC rheumatology, 6(1), 85.

Rines, J., Daley, K., Loo, S., Safari, K., Walsh, D., Gill, M., ... & Marshall, D. (2022). A patient‐led, peer‐to‐peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food. Health Expectations, 25(4), 1486-1497.

Shewchuk, B., Green, L. A., Barber, T., Miller, J., Teare, S., Campbell-Scherer, D., ... & Marshall, D. A. (2021). Patients’ Use of Mobile Health for Self-management of Knee Osteoarthritis: Results of a 6-Week Pilot Study. JMIR Formative Research, 5(11), e30495.

Gillis, C., Martin, L., Gill, M., Gilmour, L., Nelson, G., & Gramlich, L. (2018). Food is medicine: A qualitative analysis of patient and institutional barriers to successful surgical nutrition practices in an enhanced recovery after surgery setting. Nutrition in Clinical Practice. DOI:10.1002/ncp.10215. https://doi.org/10.1002/ncp.10215

Gillis, C., Gill, M., Marlett, N., Mackean, G., GermAnn, K., Gilmour, L. E., Nelson, G., Wasylak, T., Nguyen, S., Araujo, E., Zelinski, S., Gramlich, L. (2017). Patients as partners in Enhanced Recovery After Surgery: A qualitative patient-led study. BMJ Open, 7(6). DOI:10.1136/bmjopen-2017-017002. http://bmjopen.bmj.com/content/7/6/e017002.full.pdf

Biondo, P. D., Kalia, R., Khan, R-A., Boulton, D., Marlett, N., Shklarov, S., & Simon, J. E. (2017). Understanding Advance Care Planning within the South Asian Community. Health Expectations, 00, 1-9. DOI: 10.1111/hex.12531. http://dx.doi.org/10.1111/hex.12531

Gill, M., McKenzie, E., Oswell, D., Niven, D. J., Shklarov, S., Stelfox, H. T., Bagshaw, S. M., Oxland, P., Boulton, D., Potestio, M., & Marlett, N. (2016). Patient and Family Member-Led Research in the Intensive Care Unit: A Novel Approach to Patient-Centered Research. PLoS ONE 11(8). DOI: 10.1371/journal.pone.0160947 http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0160947

Miller, J. L., Teare, S. R., Marlett, N., Shklarov, S., Marshall, D. A. (2016). Support for living a meaningful life with osteoarthritis: A patient-to-patient research study. The Patient – Patient-Centered Outcomes Research. DOI 10.1007/s40271-016-0169-9 https://link.springer.com/article/10.1007/s40271-016-0169-9

Stelfox, H., Gill, M., McKenzie, E., Oxland, P., Boulton, D., Oswell, D., Shklarov, S., Bagshaw, S. (2015). Patient and family member researchers in the ICU. Critical Care Medicine, 43(12, Suppl. 1), 141.

Publications about PaCER Program

Singh, S., Kovacs Burns, K., Rees, J., Picklyk, D., Spence, J., & Marlett, N. (2018). Patient and family engagement in Alberta Health Services: Improving care delivery and research outcomes. Healthcare Management Forum, 31(2), 57-61. DOI: 10.1177/0840470417747003. https://doi.org/10.1177/0840470417747003

Shklarov, S., Marshall, D. A., Wasylak, T., & Marlett, N. J. (2017). “Part of the team”: Mapping the outcomes of training patients for new roles in health research and planning. Health Expectations, Open Access. DOI: 10.1111/hex.12591. http://onlinelibrary.wiley.com/doi/10.1111/hex.12591/epdf

Marlett, N., Shklarov, S., Marshall, D., Santana, M., & Wasylak, T. (2015). Building New Relationships in Research: A Model of Patient Engagement Research. Quality of Life Research, 24(5), 1057-67 (Patient Engagement Special Section). DOI 10.1007/s11136-014-0845-y

Marlett, N., & Emes, C. (2010). Grey Matters: A guide to collaborative research with seniors. Calgary, AB. University of Calgary Press. http://press.ucalgary.ca/books/9781552382516

Publications co-authored by PaCERs and PaCER Alumni

Manhas, K. P., Olson, K., Churchill, K., Miller, J., Teare, S., Vohra, S., & Wasylak, T. (2022). Exploring patient centredness, communication and shared decision‐making under a new model of care: Community rehabilitation in Canada. Health & Social Care in the Community, 30(3), 1051-1063. https://doi.org/10.1111/hsc.13304

Mrklas, K. J., Barber, T., Campbell-Scherer, D., Green, L. A., Li, L. C., Marlett, N., ... & Marshall, D. A. (2020). Co-design in the development of a mobile health app for the management of knee osteoarthritis by patients and physicians: qualitative study. JMIR mHealth and uHealth, 8(7), e17893.

Moayyedi, P., MacQueen, G., Bernstein, C. N., Vanner, S., Bercik, P., Madsen, K. L., ... & Fernandes, A. (2020). IMAGINE Network’s Mind And Gut Interactions Cohort (MAGIC) Study: A protocol for a prospective observational multicentre cohort study in inflammatory bowel disease and irritable bowel syndrome. BMJ open, 10(10), e041733.

Carr, E. C., Ortiz, M. M., Patel, J. N., Barber, C. E., Katz, S., Robert, J., ... & Marshall, D. A. (2020). Models of arthritis care: a Systems-level evaluation of acceptability as a dimension of quality of care. The Journal of Rheumatology, 47(9), 1431-1439.

Lopatina, E., Miller, J. L., Teare, S. R., Marlett, N. J., Patel, J., Barber, C. E., ... & Marshall, D. A. (2019). The voice of patients in system redesign: A case study of redesigning a centralized system for intake of referrals from primary care to rheumatologists for patients with suspected rheumatoid arthritis. Health Expectations, 22(3), 348-363.

Carr, E. C., Patel, J. N., Ortiz, M. M., Miller, J. L., Teare, S. R., Barber, C. E., & Marshall, D. A. (2019). Co-design of a patient experience survey for arthritis central intake: an example of meaningful patient engagement in healthcare design. BMC health services research, 19, 1-10.

Barber, C. E., Sandhu, N., Rankin, J. A., MacMullan, P., Marshall, D. A., Barnabe, C., ... & Mosher, D. (2019). Rheum4U: development and testing of a web-based tool for improving the quality of care for patients with rheumatoid arthritis. Clin Exp Rheumatol, 37(3), 385-392.

Barnabe, C., Miller, J., Teare, S., Eaglespeaker, C., Roland, B., Eshkakogan, N., ... & Marshall, D. (2019). Solution model for enhancing the experiences of urban first nations and Métis patients accessing and navigating the health system for inflammatory arthritis care. The International Indigenous Policy Journal, 10(2), 1-13. (https://ojs.lib.uwo.ca/index.php/iipj/article/view/8058)

Barber, T., Sharif, B., Teare, S., Miller, J., Shewchuk, B., Green, L. A., ... & Marshall, D. A. (2019). Qualitative study to elicit patients’ and primary care physicians’ perspectives on the use of a self-management mobile health application for knee osteoarthritis. BMJ open, 9(1), e024016. doi: 10.1136/bmjopen-2018-024016

Lopatina, E., Miller, J. L., Teare, S. R., Marlett, N. J., Patel, J., Barber, C. E., ... & Marshall, D. A. (2019). The voice of patients in system redesign: A case study of redesigning a centralized system for intake of referrals from primary care to rheumatologists for patients with suspected rheumatoid arthritis. Health Expectations, 22(3), 348-363. https://doi.org/10.1111/hex.12855

Wilson, T., Miller, J., Teare, S., Penman, C., Pearson, W., Marlett, N. J., Shklarov, S., Galbraith, D., Southern, D., Knudston, M., Norris, C., James, M. T., & Wilton, S. (2017). Patient perspectives on engagement in decision-making in early management of non-ST elevation acute coronary syndrome. BMC Medical Informatics and Decision Making, 17:153. Open Access http://rdcu.be/zIVR

Haywood, K., Brett, J., Salek, S., Marlett, N., Penman, C., Shklarov, S., Norris, C., Santana, M. J., & Staniszewska, S. (2015). Patient and Public Engagement in Health-Related Quality of Life and Patient-Reported Outcomes Research: What’s Important and Why Should We Care? Findings from the first ISOQOL Patient Engagement Symposium. Quality of Life Research, 24(5), 1069-76 (Patient Engagement Special Section). DOI 10.1007/s11136-014-0845-y