Contact Us

This contact information is primarily offered for questions regarding the International Collaborative Study of Susac's Syndrome.  We suggest:

• any questions about the diagnosis and treatment of an individual patient be channelled through the patient's physician.
• visitors should be aware that the material on this website has been designed for information purposes only. It should not be used in place of medical advice, instruction and/or treatment. If you have specific questions, please consult your doctor or appropriate healthcare professional.  

 

Robert Rennebohm, MD

• Director and Co-investigator, ICS
• Clinical Professor, Pediatric Rheumatology
• University of Calgary, Faculty of Medicine
• Calgary, Alberta; Canada
• robert.rennebohm@albertahealthservices.ca

 

Ilka Kleffner, MD

• ICS Coordinator, Germany
• Department of Neurology, University of Muenster, Germany
• kleffnil@uni-muenster.de

 

Robert Egan, MD

• Chairman of Susac's Syndrome subcommittee of NANOS (North American Neuro-Ophthalmology Society)
• Neuro-ophthalmologist/Neurologist at St. Helena Hospital; St. Helena, California, USA
• eganr8@gmail.com

 

Yvonne Heerema, MD, CCFP  (Retired)

• Not only a physician, but also a patient with Susac's Syndrome
• Calgary, Alberta; Canada
• heerema.y@gmail.com 

 

Debbie Desrosiers

• Website Administrator
• Data Manager for the Susac's Syndrome International Collaborative Study (SS-ICS)
• desrosin@shaw.ca

 

Susac Syndrome-International Collaborative Study Mailing Address:

 

 

Susac Syndrome International Collaborative Study

c/o Robert Rennebohm, MD

Division of Pediatric Rheumatology

Room C4-348

Alberta Children's Hospital

2888 Shaganappi Trail NW

Calgary AB, Canada  T3B 6A8